What vacation?

     All my writing friends are preparing to go to the Pennwriters Conference while I, sadly, will miss it this year.  Since it is in Pittsburgh and The Curmudgeon is still having the occasional seizure, I don’t feel comfortable going that far away for four days.

     Oh darn, no baskets for me this year.

     However, I am truly going to miss my vacation this year.  Those four days were my decompression days.  The only time I get a break from being a caregiver for an entire year.

     I’d kill for four days of indulging myself.  Four days of not having to figure out what to make for dinner, cooking it, and then washing dishes.  Four days of not having two dogs and The Curmudgeon depending on me for everything.

     Hey, my Pennwriter friends, if you think I am nuts each year, imagine how I’ll be next year without my break this year.  Hehehehe!

     You all have a good one!

Nice day to weed and take pictures

     I managed to get out and get a little weeding in yesterday.  While I was out there I took a few pictures.  You all have a good one!

Gotta love them!

It seems that the pups have decided every evening after dinner it is time for a crazy romp.  This hucklebutting, chase me, chase you, on and off the couch, living room to kitchen insanity is a hoot.

If you saw these two you’d never believe that Gavin is going on twelve and Patty is nine.  They make us smile and laugh.  They are our greatest blessing.

You all have a good one and keep on laughing.

Updating the week

I’ve put the fairy tale on its own page and will add to as I can.  You will find it up above amongst the other pages.

The Curmudgeon skipped his Avonex this week and is getting around better.  He actually felt energetic enough to mow the lawn.  Go fig.  I do believe it is time his neurologist switched him to some other form of beta-seron.

The dogs are getting much more exercise now with the new fence and, as a result, are sleeping more deeply.  You should hear the snoring here.

You all have a good one!

        (This picture was taken last summer as you can tell by the old not dog proof fence.)

 

Give me another day like this!

     I need more days like yesterday.  I was out and about with G from 11:30 until after 3.  We went to a bagel shop, a dollar store, and a grocery store. 

     Then we went for a good walk in the park.  All the trees are in bloom there.

     Then we made a stop at the farmers market.

      You all have a good one!

Let’s see what happens.

     A while back I posted a bit of a rude comment on the National MS society’s FB page. 

“Thanks for nothing MS Society. It seems that once someone has secondary progressive MS they are ignored and forgotten. I am a caregiver, my husband is a victim, we receive no help from anyone…and yet you have the nerve to ask us for donations? For what? Where is this ‘help’ for us? I am at the end of my rope and the rope is down to a mere thread.”

     I was actually surprised when they asked if they could contact me in person.  I said they could.

     I got a call today.  So far it sounds as though they will try to help.  We’ll see.  We have yet to have any sort of help from any MS group.  Once they find out our income (just above what they consider ‘in need’) and that he is secondary progressive and not relapsing remitting, they and any help offered tends to disappear.

     It is still my opinion that all they do is take in money and do not truly assist anyone.   I hope they prove me wrong.

      The only thing The Curmudgeon ever got from an MS group was an ice vest and that was because of his neurologist more than anyone.  I’m not looking for a free ride, but we do need some help because I cannot do it all! 

     After spending so much time clearing out his mother’s house, having the heart attack, and feeling so darned tired all the time, I fell far enough behind in my house cleaning that it seems overwhelming.  If only the house were cleaned to a level where I could keep it up without feeling so completely overwhelmed, I’d feel very less stressed each day. 

     The fact that I wake up stressed on a daily basis, which in turn stresses him out, has become a vicious circle.  I no longer smoke because of the heart attack but it doesn’t mean that I’m not tempted to light one every single day.

     He can’t do much around here, he can’t even take the dogs for a stroll like he used to, with his scooter out of commission it’s a no go.   His scooter came out of our pocket in total and when it stopped working the manufacturer never responded on repairing it.  (Basically we were told screw you.)  Now it sits in the yard collecting rust and weeds.  I can’t fix it and he most certainly can’t.

     Anyway, it’s another day of one foot in front of the other, trudge forward, and hope tomorrow is better.

     You all have a good one!

All this fresh air and free running in the yard…

     Is knocking us out!

You all have a good one!